Lilybugs is a charity
knitting and quilting group that knits hats and socks and sews blankets
babies and children at the
Lilybugs was formed in memory of Lily Belle Green. Lily was born in November, 2004 with congenital heart disease. Lily had one closed heart surgery and two open heart surgeries in order to save her life. She was hospitalized numerous times and suffered many complications and setbacks during her first sixteen months. All of Lily’s hospitalizations were at UCSF Children’s Hospital, primarily in the Pediatric Cardiac Intensive Care Unit.
Most of the patients in the pediatric cardiac unit are newborns or children in the first year of their lives. Going from the excitement of the maternity ward into the terror of the cardiac unit is huge shock, and a troubling experience for the family. Lily Belle’s parents have expressed to us how much a colorful, hand made item can help make the traumatic experience of seeing your child hooked to monitors and lines more gentle and soft edged. Unfortunately sometimes these items will become treasured memories for families whose children are not so lucky to survive congenital heart disease.
As Lily was in the hospital or in a clinic during almost every week of her life, she became well known by the team who cared for her. Everyone was continuously impressed by her strength, vitality and happy demeanor. Throughout her life Lily’s spirit remained irrepressible. Her smile, her bright blue eyes, and her adorable round face captured and captivated everyone who met her.
August 2006, Lily’s
indomitable spirit was set free of her compromised body after she
second and final cardiac arrest. She
missed immensely by her family and friends.